Thursday, July 20, 2006

An Open Letter to George W. Bush - And a Plea

I cried today. I know that in YOUR grand scheme of things, that probably doesn't matter. Lots of people cry. Because they're sick or impoverished or frustrated or sad or angry or all of those things. But I thought you ought to know that I cried today.

I just can't understand how you could have used the power of veto for the first time to overturn legislation that provided a glimmer of hope and optimism for people, like me, who live with chronic or terminal illness.

I understand that your veto doesn't "ban" important research, but it certainly impedes it. Federal funding would dramatically change the scope of research around diabetes and other diseases, and would widen the circle of scientists involved and accelerate the rate at which a cure might be found.

I need that cure. I've lived for nearly 25 years with a disease that has the potential to kill me. Frankly, I can live with the ten daily bloodsugar tests, with a pump that keeps me alive strapped to my hip, with the other medications that help me keep my disease controlled. But I'm struggling with all of the rest. I live every single day with the fear of losing my eyesight or the sensation in my hands and feet, I live with the prospect of pain caused by nerve damage and the knowledge that someday my kidneys just might fail. I am more likely than other women to die at an early age from a heart attack or a stroke. It is the looming presence of these complications that frustrate and frighten me most.

I am baffled at how you can call yourself pro-life. You chose to simply ban federal funding for stem cell research, rather than consider a compromise. You chose to let hundreds of thousands of embryos be discarded rather than used to help people like me live a better, fuller life. What you've done isn't moral, it's narrow-minded and it's wasteful. And I have to live with your decision.

As you know, hundreds of labs across the country - including medical research powerhouses like Harvard and MIT - receieve federal funds. What if the cure for diabetes could have come from stem cell research in one of those labs? Further, labs receiving federal funding share their findings and review one another's conclusions - which is not the case with the few private labs that can fund their own research. What if scientists sharing their work with stem cells could have cured diabetes? Certainly, with federal funds behind this research, treatments - cures - could have come sooner.

If you'd not used the veto power, government officials could have chosen to regulate how embryos would be cultivated, handled and ultimately destroyed. But you chose, instead, to simply squash the hope that stem cell research hold for billions of people. I'm not sure how you sleep at night.

Today, at a fertility clinics across the United States, there are embryos being flushed down metal sink drains, thawed and left to expire, and dropped into medical waste bins to be brought to a local hospital and incinerated. They are being discarded - along with my hope for a cure in my lifetime - along with the hope of billions for an end to their suffering, their frustration, their dying.

I cried today, because I know that roadblocks have been built on the paths to cures - I cried because I am tired of living with fear - I cried for myself and for my friend A, who uses a wheelchair in her fight against muscular distrophy, and my grandparents who died from complications of diabetes, and my grandfather-in-law who lives his life confused and broken, in a nursing home for people with alzheimers. I cried for all of the wasted life, literally being flushed down the drain, and the potential for relief that slips away with that life.

I hope you can live with this decision.

I am sending this letter today. I am copying my Senators with a thank you for their support of the legislation - and my representatives for their efforts to override the veto. I would encourage others to do same.

Clearly, the letter I sent to the Whitehouse prior to the decision had no effect. And even though the decision is made, I think it's important for us to make a statement about responsiblity. A statement about what we think about the decision and why.


See more thoughts from Kerri, Art-Sweet, Shannon, and Kassie re: the veto.

9 comments:

Kerri. said...

Fantastic letter, Nicole.

And I have to admit that I cried, too. Those hot, furious tears that leave marks on your face and trails through your soul.

Shannon said...

Send it Nicole. Someone needs to see the impact the veto has made.

Sandra Miller said...

How could he do this?

How can he justify leaving embryos to expire -- throwing them away -- rather than using them to save lives?

And just who is he saving here?

Hundreds of thousands of embryos that will ultimately be discarded.

This is insane!

Damn it! I'm crying, too. Just thinking about this stupid, stupid decision.

art-sweet said...

Given how painful and expensive IVF is, it's unreasonable to expect that there won't be embryos left over.

So I should be forced into donating my embryos (pre-embryos, really, as they're not technically embryos until they've implanted) - still sitting in a freezer - to another couple, rather than seeing them go to help research that will PROmote LIFE for millions of living human beings.

This makes me so furious.

Nicole P said...

If I thought the adoption of embryos concept was a viable one, I might not be as furious (scratch that, I would STILL be this furious). But, there are, by some estimates, over 400,000 embryos in clinics right now that will NOT be used. They will be disposed of. Discarded. Put in the trash. 400,000 - they cannot possibly think they could adopt all of those embryos out, could they? Also, you are so right, it should be your choice - the choice of the couple involved, not the government's choice what happens next with them.

The more I think about, the angrier I get.

Beside the whole issue of this not really being a MORAL choice - what about the separation of church and state? What about the idea that the government shouldn't be defining MY moral code? Federal funding shouldn't be denied because GWB or any other government official has misgivings about the "morality" of what a lab is doing...

Lyrehca said...

Great letter--please do send it.

And everyone, keep your eyes on the prize: 1/20/2009.

julia said...

O came to me last night and said "Do you know what Bush did? He just said No to a cure. I hate him, mum, I really hate him."

Fucking prick. So do I, baby, so do I.

sweet & sickly said...

hi nicole.
thanks for the comment. so where are you and your boyfriend moving to?
it's cool to live by the beach but i don't know much different. the only cool thing about where i live is they filmed dawson's creek here but that's not that cool.

thanks for the email address i've got it in my email address book.


love kacey xx

Anonymous said...

Hi.

My name is hannah, I'm fifteen, and I don't know a single person with diabetes, but I cried when I read your letter.

Send your letter. And I'll write one, too. I'm terrified that humanity could really be this stupid.

I just don't understand who George Bush thinks he's helping. Isn't that his job?